41. Clinical Knowledge Summaries Patient Information Leaflet. Cystic fibrosis. Open another leaflet Open another leaflet Return to home page Return to home page http://cks.library.nhs.uk/patient_information_leaflet/cystic_fibrosis

Proceed Proceed

42. Cystic Fibrosis BUPA Great Wales Run. Great Wales Run Sunday 27 July 2008 Cardiff Bay, Cardiff. Congratulations to everyone who took part in the inaugural BUPA Great Wales http://www.realbuzz.com/microsites/cystic_fibrosis/wales.php

Bupa Great Wales Run Sunday 27 July 2008 Cardiff Bay, Cardiff Entries are now open for the second Bupa Great Wales Run that takes you on a 10k flat, fast route through the impressively regenerated Cardiff Bay area. Last year Swansea born former WBO Cruiserweight Champion, Enzo Maccarinelli led a team of over 250 Team CF runners in this inaugural event. Simply click online now to secure your place. All Team CF runners receive: Running vest or t-shirt Comprehensive fundraising pack Team newsletters Weekly training plans e-newsletters Post run hospitality We would love to have you with us in 2008 so please tick the box on entering online to say you'd like to support Cystic Fibrosis Trust and use your place to run with us and raise whatever you can to help us See Off CF Home Flora London Marathon Royal Parks Half Marathon Bupa London 10,000 ... Contact Us Registered Charity No. 1079049 Registered Company No. 3880213

43. Cystic Fibrosis The page you are looking for is no longer available. http://pediatrics.about.com/cs/pediatricadvice/a/cystic_fibrosis.htm

zGCID=" test0" zGCID+=" test4" zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zDO=0 You are here: About Health Pediatrics Pediatrics ... Submit to Digg Pediatric Resources Pediatric Diseases and Conditions Pediatric Parenting Index Pediatric Basics for New Parents More Pediatric Resources Ages and Stages Take a Quiz Most Popular Height Predictor - How tall will your kids be? Ideal Body Weight Calculator for Kids and Adults Teen Quiz - Am I Fat? Symptoms of Diabetes Screening Quiz ... Autism Screening Quiz Related Sites Baby Products Parenting of K-6 Children Parenting of Adolescents Cystic Fibrosis From Vincent Iannelli, M.D. Your Guide to Pediatrics FREE Newsletter. Sign Up Now! About.com Health's Disease and Condition content is reviewed by Kate Grossman, MD Page No Longer Available The page you are looking for is no longer available. Please see this article on Cystic Fibrosis for more information and advice. Created: December 3, 2003 Pediatric Resources Pediatric Diseases and Conditions Pediatric Parenting Index Pediatric Basics for New Parents More Pediatric Resources Ages and Stages Take a Quiz Related Articles Preparing the School for Your Child with Cystic Fibrosi...

44. Cystic Fibrosis - Symptoms, Causes & Treatment Cystic Fibrosis Information plus the Latest News on Cystic Fibrosis Treatments HealthNewsflash. http://www.healthnewsflash.com/conditions/cystic_fibrosis.php

Search our Archive for the Latest News on Cystic Fibrosis Breathing for a Living: A Memoir BUY NOW! Breath BUY NOW! Alex: The Life Of A Child BUY NOW! Alive at 25: How I'm Beating Cystic Fibrosis BUY NOW! Understanding Cystic Fibrosis BUY NOW! Cystic Fibrosis: the Facts BUY NOW! Search our Archive for the Latest News on Cystic Fibrosis Browse By Category Browse Alphabetically Search Health Conditions Information on Cystic Fibrosis Table of Contents What Is Cystic Fibrosis? How Common Is Cystic Fibrosis? What Are the Signs and Symptoms of Cystic Fibrosis? When Should You Suspect That a Child May Have Cystic Fibrosis? ... Keeping on Top of Your Condition Common Misspelling: systic fibrosis What Is Cystic Fibrosis? Cystic fibrosis (CF) is a chronic, progressive, and frequently fatal genetic (inherited) disease of the body's mucus glands. CF primarily affects the respiratory and digestive systems in children and young adults. The sweat glands and the reproductive system are also usually involved. On the average, individuals with CF have a lifespan of approximately 30 years. CF-like disease has been known for over two centuries. The name, cystic fibrosis of the pancreas, was first applied to the disease in 1938.

45. Cystic Fibrosis NaturDoctor.com; Nutrition, Herbs, Vitamins; Classical Homeopathy. Subscribe to our Newsletter. Ronald Steriti, ND, PhD; Licensed Naturopathic Physician http://www.naturdoctor.com/Chapters/Diseases/Cystic_Fibrosis.html

NaturDoctor.com Nutrition, Herbs, Vitamins Classical Homeopathy Subscribe to our Newsletter Ronald Steriti, ND, PhD Licensed Naturopathic Physician Diseases Vitamins Library Books ... Links My new web site NaturoBase.com has a lot more information - over 6,000 research studies, etc! Visit the NaturDoctor Store for professional nutritional supplements. Basic Nutritional Support Hormone Panels Children's Health Men's Health ... Lifexpand.com - tapping into the Brazilian rainforest. Information on Cystic Fibrosis Description Cystic Fibrosis is a generalized, autosomal recessive disorder of infants, children and young adults with widespread dysfunction of the exocrine glands. Characteristics include chronic pulmonary disease, pancreatic insufficiency, abnormally high levels of electrolytes in the sweat and less frequently biliary cirrhosis and diabetes mellitus. Cystic Fibrosis is the most common lethal genetic disease. Causes Autosomal recessive genetic defect RISK FACTORS Positive family history (rarely seen due to recessive nature) Conventional Labs Elevation of sodium and chloride concentrations in sweat (quantitative pilocarpine iontophoresis sweat test) Genetic screening if sweat test inadequate Stool trypsin and chymotrypsin absent or diminished 72 hour fecal fat excretion - increased fat in stool Decreased albumin, fat soluble vitamins

46. Cystic Fibrosis The Official Parent s Sourcebook on CYSTIC FIBROSIS (Fibrocystic Disease of Pancreas; Mucosis; Mucoviscidosis; Pancreatic Fibrosis) http://www.icongrouponline.com/Health/Cystic_Fibrosis.html

ICON Health Publications Official Health Sourcebooks Search ICON Health Titles: The Official Parent's Sourcebook on CYSTIC FIBROSIS (Fibrocystic Disease of Pancreas; Mucosis; Mucoviscidosis; Pancreatic Fibrosis) Revised and Updated for the Internet Age P A P E R B A C K Paperback Book Paperback Book Order by phone: 800-843-2665 (within USA) 1-201-272-3651 (from outside USA) E B O O K Pages Price $28.95(USD) ISBN Published Synopsis A comprehensive manual for anyone interested in self-directed research on . Fully referenced with ample Internet listings and glossary. Related Conditions/Synonyms Fibrocystic Disease of Pancreas; Mucosis; Mucoviscidosis; Pancreatic Fibrosis Description Table of Contents Introduction Overview Organization Scope Moving Forward PART I: THE ESSENTIALS Chapter 1. The Essentials on Cystic Fibrosis: Guidelines Overview What Is Cystic Fibrosis? How Common Is CF? What Are the Signs and Symptoms of CF? When Should You Suspect That a Child May Have CF? How Is CF Diagnosed? What Make CF a Genetic Disease? How Is CF Treated? How Does the Gene Mutation Cause CF?

47. Cystic Fibrosis Base de données sur les maladies rares et les médicaments orphelins. http://www.orpha.net/static/GB/cystic_fibrosis.html

Orphanet database access Cystic fibrosis Direct access to data Summary CFTR gene (chromosome 7). More than 1250 mutations have been reported. Nearly 70% of all cases are caused by the delta F580 allele, with 30 other mutations accounting for a further 20% of cases. There is no clear correlation between genotype and phenotype. In addition to the allelic heterogeneity and the occurrence of multiple mutations in the same gene, a wide range of other factors may influence the phenotype, including the environment and disease modifying genes. Diagnosis is suspected on the basis of sweat test results (chloride concentration above 60 mmol/L) and is confirmed by identification of a CFTR Clinical signs Autosomal recessive inheritance Chronic inflammatory lung disease Immunoglobulin dysfunction/reduction Liver/biliary tract anomalies Lung fibrosis Malabsorption/chronic diarrhoea Pancreas anomalies Recurrent infections Liver enlargement (excl. storage dis.) Update : 15/04/2007 Orphanet database access Orphanet database access Cystic fibrosis Direct access to data Summary CFTR gene (chromosome 7). More than 1250 mutations have been reported. Nearly 70% of all cases are caused by the delta F580 allele, with 30 other mutations accounting for a further 20% of cases. There is no clear correlation between genotype and phenotype. In addition to the allelic heterogeneity and the occurrence of multiple mutations in the same gene, a wide range of other factors may influence the phenotype, including the environment and disease modifying genes. Diagnosis is suspected on the basis of sweat test results (chloride concentration above 60 mmol/L) and is confirmed by identification of a

48. Cystic Fibrosis Overview of cystic fibrosis, one of the most common recessive genetic diseases in the US. http://www.labtestsonline.org/understanding/conditions/cystic_fibrosis.html

TESTS Test not listed? 5-HIAA A/G Ratio ACE ACT ACTH AFB Smear and Culture AFP Tumor Markers Albumin Aldolase Aldosterone Allergy Testing ALP Alpha-1 Antitrypsin ALT AMA Ammonia Amylase ANA Antibody Tests Antiglobulin, Direct Antiglobulin, Indirect Antiphospholipids Antithrombin Apo A Apo B ApoE Genotyping aPTT ASMA ASO AST Autoantibodies Bicarbonate Bilirubin Blood Culture Blood Donation Blood Gases Blood Smear Blood Transfusion Blood Typing BMP BNP Bone Markers Bone Marrow BRCA BUN C-peptide CA-125 CA 15-3 CA 19-9 Calcitonin Calcium Carbamazepine Cardiac Biomarkers Cardiac Risk Cardiolipin Antibodies Catecholamines CBC CCP C. diff CEA Celiac Disease Tests Ceruloplasmin CF Gene Mutation Chemistry Panels Chlamydia Chloride Cholesterol Chromogranin A CK CK-MB Comprehensive Metabolic Panel CMV Coagulation Factors Complement Copper Cortisol Creatinine Creatinine Clearance CRP CRP, high-sensitivity

49. Sometimes It Is All In The Genes - Part I - Case Study Collection - National Cen Sometimes it is All in the Genes, Part I, by Anne Galbraith and David Howard, University of Wisconsin—La Crosse. From the Case Study Collection of the http://www.sciencecases.org/cystic_fibrosis/cystic_fibrosis1.asp

Sometimes it is All in the Genes Part I—"The Genetic Test" by Anne Galbraith and David Howard Department of Biology "Your pregnancy seems to be progressing just fine, but we'll do some blood work to be on the safe side. As long as we're drawing blood from you today, Nancy, would you consent to participate in one of the genetics studies we're conducting here at People's Best Hospital?" Dr. Kwin prided herself on putting her patients at ease, but her question caught Nancy a little off guard. "What would that entail, Dr. Kwin?" While Nancy believed Dr. Kwin wouldn't ask her to do anything that wasn't a good idea, she never said yes to anything until she had all the information. Dr. Kwin began to explain, "Well, as you know, PBH is a research and teaching hospital. One research team is trying to determine the frequency of the gene for the genetic disorder cystic fibrosis in the U.S. population. And since you are having blood drawn anyway as you enter your second trimester...." Genetic disorder? Cystic fibrosis? The phrases made Nancy feel panicky. She interrupted Dr. Kwin mid-sentence. "You don't think I have that disease, do you? Isn't cystic fibrosis serious? How could I have caught it?" The questions came out in a rush.

50. Open Directory - Cystic Fibrosis - Genetic Disorders - Conditions cystic_fibrosis. Main Health - Conditions_and_Diseases - Genetic_Disorders - cystic_fibrosis. Latest news for this category http://www.odp.toreuse.pl/Health/Conditions_and_Diseases/Genetic_Disorders/Cysti

Warning : fopen(cache/Cystic Fibrosis - Genetic Disorders - Conditions and Diseases - Health .html) [ function.fopen ]: failed to open stream: No such file or directory in /home/toreuse/public_html/odp/index.php on line Warning /home/toreuse/public_html/odp/index.php on line Warning /home/toreuse/public_html/odp/index.php on line Main Health Latest news for this category: Warning function.curl-setopt ]: CURLOPT_FOLLOWLOCATION cannot be activated when in safe_mode or an open_basedir is set in /home/toreuse/public_html/odp/rss2html.php on line Sun shines on cystic fibrosis walk (Windsor Star) More than 300 walkers took part in the Great Strides Walk for Cystic Fibrosis and raised more than $40,000 on Sunday. The walk began at the Riverside Sportsmen's Club and went along the Ganatchio Trail to Tecumseh and back, a distance of about five kilometres. MORE INFO Liberty kids fight cystic fibrosis (SouthtownStar) Liberty Junior High School students on Friday participated in a walk-a-thon to raise funds for the Cystic Fibrosis Foundation. MORE INFO TRIUMPHS: Tree company owner stands tall in cystic fibrosis battle (Detroit Free Press) Twice a year, Sue Shock writes her company's newsletter, the Shock Report, and sends it to 6,000 customers of Shock Brothers Tree Care. It warns about emerald ash borers and explains the evils of things like pine wilt. It contains corny jokes and quotes about trees.

51. Cystic Fibrosis And Sinusitis Dr. Grossan, an ENT specialist and author gives special advice on ear, nose, throat, problems for Cystic Fibrosis (CF) patients. http://www.ent-consult.com/cystic_fibrosis.html

Dr. Grossan's Ear, Nose and Throat Consultant Pages Cystic Fibrosis and Sinusitis Medicine has advanced the treatment of Cystic Fibrosis (CF) significantly in the past 10 years. Various measures that clear the lungs are becoming standardized. The Cystic Fibrosis Foundation as well as other support groups have been contributing not only to uncovering a cure but in helping the patient and their families as well. In 1989 the gene etiology of this condition was recognized and gene therapy is now being actively pursued. The CF patient fails to have normal mucus clearance. Thick tenacious mucus keeps bacteria from being cleared and prevents antibiotics from being effective. Clearance of mucus from the chest therefore is a paramount treatment objective. Various physical therapy methods include chest percussion, forceful exhalation, various dilators, postural drainage. The flutter device uses sound vibration to help reduce the thickness of the mucus. Inhalation of drugs that break down the structure of the mucus are in use. A similar thick fluid causes sinus infections. Nasal polyps are common. This is a type of bag of water where the liquid is maintained within the cell so that the cell expands and blocks the nose. A mucocele can develop, often in the frontal sinus. This is a similar bag of water within a membrane that expands and puts pressure on the sinus wall. Headaches in the frontal sinus area - above the eyes - is a common sign.

52. Cystic Fibrosis Cystic Fibrosis. What is cystic fibrosis? Who is at risk for cystic fibrosis? What causes cystic fibrosis? How does the carrier test work? http://www.labcorp.com/genetics/genetic_disorders/cystic_fibrosis.html

Cystic Fibrosis Search Go When you see this symbol, click for more detailed discussions Cystic Fibrosis What is cystic fibrosis? Who is at risk for cystic fibrosis? What causes cystic fibrosis? How does the carrier test work? ... Back to Top What is cystic fibrosis? Cystic fibrosis (CF) is one of the most common inherited diseases in Caucasians. CF is caused by a failure of a protein involved with the chloride balance in the body. This causes respiratory problems (breathing problems and lung infections), digestive problems (difficulty in absorbing some types of foods), and infertility. CF does not cause mental retardation or birth defects. The symptoms of CF can be highly variable; they can be mild in some people and cause a life-threatening illness in others. With good treatment, the average person with CF lives into their 30s. Back to Top Who is at risk for cystic fibrosis? Cystic fibrosis is most common in Caucasians, but is found in all ethnic groups. Even if an individual has no family history of CF or a child with CF, it is possible to be a CF carrier. Approximately 1 in 2500 Caucasians is born with the disease. The carrier frequency of several ethnic groups is shown in Table 1. The chance of being a carrier is higher for those who have a family history of CF.

53. Emory Children's Center - Cystic Fibrosis Center Emory Children s Center and Children s Healthcare of Atlanta have partnered to provide comprehensive inpatient and outpatient care for cystic fibrosis http://www.emoryhealthcare.org/departments/childcenter/services/cystic_fibrosis.

Home Departments Patient Guide Clinical Trials ... Contact Us Emory Children's Center Children's Center Patient/Visitor Guide What We're About Services ... Staff Emory Children's Center and Children's Healthcare of Atlanta have partnered to provide comprehensive inpatient and outpatient care for cystic fibrosis patients from newborn through adulthood. The freestanding CF Center is located on the Emory campus, just a couple of blocks from Children's Healthcare of Atlanta Egleston Hospital. Services provided at the CF Center include both an outpatient clinic operated by Emory University and an inpatient facility operated by Children's Healthcare of Atlanta to which both children and adults may be admitted. Emory Children's Center physicians provide the care at both the outpatient clinic and inpatient facility. All CF patients' emergency, surgical or intensive care needs are provided at Children's Healthcare of Atlanta and Emory University affiliated hospitals. Services The resources and services provided by the Cystic Fibrosis Center include: Diagnostic sweat testing, gastrointestinal and pulmonary function testing

54. Cystic Fibrosis Cystic Fibrosis. Lab studies request form CPT Codes/Price List (PDF). CF is a common autosomal recessive disorder that affects many functions of the body http://www.ggc.org/Diagnostics/Molecular/cystic_fibrosis.htm

Cystic Fibrosis Contact Site Index Search GGC Website var MenuLinkedBy="AllWebMenus [4]",awmMenuName="mainmenubar",awmBN="638";awmAltUrl=""; Cystic Fibrosis Lab studies request form CPT Codes/Price List (PDF) adults with a positive family history of cystic fibrosis partners of people with CF couples planning a pregnancy and couples presenting for prenatal care males with congenital bilateral absence of the vas deferens DNA testing for cystic fibrosis at the Greenwood Genetic Center screens for the 33 most common mutations, to detect approximately 90% of mutations causing CF occurring in Caucasians. 97% of Ashkenazi Jewish CF mutations will be detected by this analysis. Specimen Requirements : 5 to 10 ml of peripheral blood in an EDTA (lavender top) Vacutainer tube. The minimal amount needed for reliable DNA isolation is 3 ml. If necessary, ACD Solution A Vacutainer tubes (yellow top) may be substituted. Prenatal testing is available from amniocytes and CVS material. Transport : Please contact the Molecular Diagnostic Laboratory Coordinator (1-800-473-9411) for shipping information. The specimen should be kept at room temperature and delivered via overnight shipping. FedEx delivery is preferred. If shipment is delayed by one or two days, the specimen should be refrigerated and shipped at room temperature. Do not freeze the specimen. Samples collected on a Friday can be safely designated for Monday delivery.

55. /World/Nederlands/Gezondheid/Kinderen/Aandoeningen_en_Ziekten/Cystic_Fibrosis/ : /World/Nederlands/Gezondheid/Kinderen/Aandoeningen_en_Ziekten/cystic_fibrosis/ Onestop site for all things Internet, large categorized collection of http://search.webpagethai.com/odp/index.php?c=/World/Nederlands/Gezondheid/Kinde

56. Valley Home Care - Help For Patients And Caregivers - Sleep Apnea, Asthma, Diabe Since 1984 that has been the goal of Valley Home Care by providing the Home Medical, Respiratory, Pediatric and Rehabilitation products and services you http://www.valley-homecare.com/health_issues.asp?issue=cystic_fibrosis

57. Bmj.com Topics : Education and debate Systematic reviews and lifelong diseases Heather E Elphick, Anton Tan, Deborah Ashby, and Rosalind L Smyth http://bmj.bmjjournals.com/cgi/collection/Cystic_fibrosis

@import url(/css/common.css); @import url(/css/layout.css); @import url(/css/header.footer.style2.css); @import url(/css/services.css); @import url(/css/section.non-article.css); Jump to: Page Content Site Navigation Site Search You are seeing this message because your web browser does not support basic web standards. Find out more about why this message is appearing and what you can do to make your experience on this site better. Search the BMJ BMJ BMJ Journals BMJ Careers BMJ Learning ... BMJ Group Search this site: Register Subscribe Sign In Research ... Topics No articles have yet been added on this topic. This week's print issue Full contents Subscribe Past issues ... Enlarge cover image Tools Email to friend Print this page Services Advanced search Rapid responses Blogs Podcast ... Google Scholar Online poll web surveys Take Our Poll Find out more Most read last week View RSS feed Student BMJ Risk of surgery for inflammatory bowel disease: record linkage studies What can you learn from this BMJ paper? Read Leanne Tite's Paper+ www.student.bmj.com

58. Cystic Fibrosis - Inherited Lung Disease - MEDgle - Ihre Symptome http//www.medicinenet.com/cystic_fibrosis/article.htm. www.medicinenet.com http//www.dnadirect.com/patients/tests/cystic_fibrosis/more. http://www.medigle.de/index.jsp?issearch=true§ion=keyword&keyword=cystic fib

59. Cystic Fibrosis http//www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/cystic_fibrosis?open . Cystic Fibrosis in Australia 2007, Symptoms, Cystic Fibrosis in http://www.jobaccess.gov.au/JOAC/Advice/Disability/Cystic_fibrosis.htm

Skip To Content Skip To Navigation Search Advanced search Home Employers and managers Job seekers and employees ... Disability Cystic fibrosis Cystic fibrosis Related Links Links will open in a new window Better Health Channel—Cystic fibrosis Cystic Fibrosis in Australia Cystic fibrosis is a common condition affecting the respiratory, digestive and reproductive systems. The condition causes the body to produce thick secretions that affect lung function, food absorption, and fertility. Mature aged people with cystic fibrosis can also develop diabetes due to deficient insulin production as a result of food absorption problems. Symptoms and characteristics Symptoms of cystic fibrosis include: frequent visits to the toilet persistent cough, particularly with physical effort poor appetite salt loss in hot weather which may produce weakness some difficulty in breathing or wheezing with physical effort tiredness, lethargy or an impaired exercise ability. Statistics In 2006 approximately 3000 people in Australia had cystic fibrosis, a disorder affecting males and females equally (Cystic Fibrosis in Australia 2007). Workplace solutions and adjustments There are solutions and adjustments for the following job requirements: breathlessness at work or difficulty breathing ensuring physical comfort managing medication at work References Better Health Channel 2006, Cystic fibrosis, State Government of Victoria, Melbourne, viewed 17 March 2007

60. Resources cystic_fibrosis, reader logo Can I have a baby? Barnardos, 2005 (180k) A guide to help women with cystic fibrosis make informed choices. http://www.irishhealth.com/pdf/clist.php?topic=cystic_fibrosis

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