21. Accredo Health, Incorporated At Accredo’s hemophilia Health Services, our goal is simple – to enhance the quality of life of those affected by bleeding disorders. http://www.hemophiliahealth.com/

22. LA Kelley Communications, Inc. - Leaders In Hemophilia Education Chronic medical disorders like hemophilia can present such challenges. Parents feel overwhelmed because they lack the educational tools needed. http://www.kelleycom.com/

Home Scholarships FAQ Archives ... Search Chronic medical disorders like hemophilia can present such challenges. Parents feel overwhelmed because they lack the educational tools needed. Where will they find them? Which Factor Product Will You "Vote" For? Factor manufacturers work hard to win your "vote": they want you to select their blood-clotting product. They used to market only to your doctor, but now they also market directly to you, the consumer. What are the tactics they use? When is direct-to-consumer (DTC) marketing appropriate? When does it step over the line? Read the May issue of PEN Read the May issue of PEN Want more of the story? Order your own copy of PEN Our website is generously sponsored by... Educating, Empowering, Elevating © 2008 LA Kelley Communications, Inc. privacy guidelines.

23. Genome.gov | Learning About Hemophilia hemophilia is a bleeding disorder that slows down the blood clotting process. People who have hemophilia often have longer bleeding after an injury or http://www.genome.gov/20019697

Enter keyword Home About NHGRI Newsroom Staff ... Specific Genetic Disorders Learning About Hemophilia Print Version Learning About Hemophilia What is hemophilia? What are the symptoms of hemophilia? How is hemophilia diagnosed? What is the treatment for hemophilia? ... Additional Resources for Hemophilia What is hemophilia? Hemophilia is a bleeding disorder that slows down the blood clotting process. People who have hemophilia often have longer bleeding after an injury or surgery. People who have severe hemophilia have spontaneous bleeding into the joints and muscles. Hemophilia occurs more commonly in males than in females. The two most common types of hemophilia are hemophilia A (also known as classic hemophilia) and hemophilia B (also known as Christmas disease). People who have hemophilia A have low levels of a blood clotting factor called factor eight (FVIII). People who have hemophilia B have low levels of factor nine (FIX). The two types of hemophilia are caused by permanent gene changes (mutations) in different genes. Mutations in the FVIII gene cause hemophilia A. Mutations in the FIX gene cause hemophilia B. Proteins made by these genes have an important role in the blood clotting process. Mutations in either gene keep clots from forming when there is an injury, causing too much bleeding that can be difficult to stop. Hemophilia A is the most common type of this condition. One in 5,000 to 10,000 males worldwide have hemophilia A. Hemophilia B is less common, and it affects 1 in 20,000 to 34,500 males worldwide.

24. What Is Hemophilia And The Need For Hemophilia Treatment And Homecare This error in genetic code means that some of the factors are missing or that they are not working correctly in a person with hemophilia. http://www.ahfinfo.com/ahfinfo/whatishemophilia.html

Specializing in Bleeding Disorders Homecare AHF, Inc. E-MAIL: info@ahfinfo.com AHF, Inc. has earned the Joint Commission's Gold Seal of Approval™ AHF® Inc. Privacy Policy WHAT IS HEMOPHILIA? This special genetic code, passed to an unborn child, is supposed to signal a series of steps that help control bleeding by clotting. The steps needed to form a clot depend upon a series of proteins called factors. This error in genetic code means that some of the factors are missing or that they are not working correctly in a person with hemophilia. This causes people with hemophilia to bleed longer but not faster. Surface bleeds, on the outside of the body, are fairly easy to stop, even for people with hemophilia. Internal bleeding, such as bleeding into joints or muscles, can mean that it is only possible for a clot to form after the person has taken medication called clotting factor. More than 15,000 people have hemophilia A or hemophilia B in the United States. There are other bleeding disorders where one or more of the clotting factors is missing. People with hemophilia A are missing factor VIII and those with hemophilia B are missing factor IX, others may be missing factors I, II, VII, etc.

25. Hemophilia hemophilia is a genetic disorderusually inherited-of the mechanism of blood clotting. Depending on the degree of the disorder present in an individual, http://www.healthatoz.com/healthatoz/Atoz/common/standard/transform.jsp?requestU

26. Hemophilia Pediatric Oncall A hemophilia is an inherited disorder in which there is inability to form an effective clot and hence causes prolonged bleeding in a patient. http://www.pediatriconcall.com/fordoctor/diseasesandcondition/hemophilia.asp

ISSN 0973 - 0958 Search Doctor Corner Parents Corner Child Corner Articles ... Medical Advice User Name Password Remember Me New User Register Forgot Password ? Change Password Get Diagnosis ... Online MCQ's New Sections Video Podcast Audio Cast Mobile(WAP) Pedi Poll With recent reports of measles vaccine induced deaths, are the incidences of vaccine related side effects being under-reported? Yes No Translate This Page Select To Translate English To Spanish English To French English To German English To Italian English To Dutch English To Portuguese English To Arabic English To Greek English To Japanese English To Korean English To Russian English To Chinese(Sim) English To Chinese(Tra) HEMOPHILIA Dr Ira Shah M.D, DCH(Gold Medalist), FCPS, DNB Q: What is hemophilia? A: Hemophilia is an inherited disorder in which there is inability to form an effective clot and hence causes prolonged bleeding in a patient. It is seen exclusively in males. A person with hemophilia does not bleed faster, only longer. Q: How common is hemophilia? A: Hemophilia affects approximately 1 in 5,000 live male births.

27. Hemophilia Of Georgia hemophilia of Georgia is a nonprofit organization dedicated to providing services and support for Georgians who have hemophilia, von Willebrand Disease, http://www.hog.org/

Username Password Find out how you can be informed, be connected, and be heard. Camp Wannaklot Contact Us Driving Directions Factor Recalls ... Web Site Feedback search the site>> Overview of Services Agency History and Mission Statement Contact Us Directions ... Camp Counselors Welcome View the HoG video Heparin I.V. Flush Syringe Recall HoG Highlights Camp Wannaklot will be held July 20-25 2008. View the HoG video GoodSearch now available from HoG. Scholarship Donations Camp Wannaklot Volunteers Needed 15 Years of Camp Wannaklot donation Can you help continue the Camp Wannaklot tradition with a tax-deductible donation? Home Sitemap Contact Us

28. Hardin MD : Hemophilia From the University of Iowa, the *best* lists of Internet sources in hemophilia. http://www.lib.uiowa.edu/hardin/md/hemophilia.html

Hemophilia Return to Hardin MD : Home Medical Pictures People interested in this subject often clicked these ... ADHD AIDS Blood Diseases Child Diseases ... Hemophilia Pictures MEDLINE plus Hemophilia National Hemophilia Foundation : WWW resources Google Directory : Hemophilia Karolinska Hemophilia Yahoo Directory : Hemophilia Hemophilia Pictures Haemophilia (Click links in right margin for more pictures) Scroll down for pictures Clotting Heredity Joint damage David Page, Canadian hemophilia society Factor VIII Pictures Rajalaxmi McKenna / eMedicine.com MEDLINEplus Health Encyclopedia : Hemophilia A Hemophilia B A.D.A.M. / National Library of Medicine Hemophilia Univ Utah (Photos to accompany book Medical Genetics , by Lynn B. Jorde, et al) Hardin Library for the Health Sciences , University of Iowa Please send comments to hardin-webmaster@uiowa.edu The URL for this page is http://www.lib.uiowa.edu/hardin/md/hemophilia.html Last updated Tuesday, May 08, 2007 [pictures of hemophilia, hemophelia, hemophila][32967

29. Hemophilia What is hemophilia? hemophilia is a rare genetic bleeding disorder that almost always occurs in males. A person has hemophilia when he or she inherits http://www.peacehealth.org/kbase/topic/major/hw191398/descrip.htm

Hemophilia Topic Overview What is hemophilia? Hemophilia is a rare genetic bleeding disorder that almost always occurs in males. A person has hemophilia when he or she inherits problems with certain blood- clotting factors , making them unable to work properly. Blood-clotting factors are needed to help stop bleeding after a cut or injury and to prevent spontaneous bleeding. The hemophilia gene can contain many different errors, leading to different degrees of abnormality in the amount of clotting factor produced. There are two major types of hemophilia: Hemophilia A is caused by a deficiency of active clotting factor VIII (8). Approximately 1 out of every 5,000 male babies is born with hemophilia A. Hemophilia B (Christmas disease) is caused by a lack of active clotting factor IX (9). It is less common, occurring in 1 out of every 30,000 male babies. Hemophilia is usually classified by how severe it is. There are three levels of hemophilia, although they can overlap. The severity of the disease is defined by how much clotting factor is produced and in what situations bleeding most often occurs. Mild hemophilia: Clotting factor VIII or clotting factor IX level is 5% of normal or greater. Mild hemophilia might not be recognized unless there is excessive bleeding after a major injury or surgery.

30. The Hemophilia Foundation Of Michigan - Home Information about the organization, the services offered, education, research, camp programs and events. http://www.hfmich.org/

About HFM Programs Support HFM About Bleeding Disorders ... Donate HFM Butterfly Memorial Serving the Bleeding Disorders Community The Hemophilia Foundation of Michigan strives to improve the quality of life for all people affected by hemophilia, von Willebrand disease, other coagulation disorders, and related complications, including HIV/AIDS and hepatitis. Announcements Reflections on Our Path - A Memorial (PDF - 21kb) View the latest issue of The Artery HFM's newsletter Michigan League for Human Services Tax Assistance Packet RECALL NOTICE: Baxter Recalls Nine Lots of Heparin RECALL NOTICE: Medefil Recalls Lots of Heparin IV Flush Syringes Support HFM Make a Child's Dream Come True! Double your donation to HFM by contributing through the Detroit Free Press Summer Dreams Program LANSING DAY - Join HFM at the State Capitol on May 28, 2008 This email address is being protected from spam bots, you need Javascript enabled to view it ~ NEW ~ Swinging for Smiles Golf Outing and Charity Dinner Auction June 9, 2008 - Fox Hills, Plymouth America's British Reliability Run - Sponsoring a fundraiser for HFM September 27-28, 2008

31. Hemophilia Federation Of America : Hemophilia Federation Of America The vision of the hemophilia Federation of America is that the bleeding disorders community has removed all barriers to both choice of treatment and quality http://www.hemophiliafed.org/

May 21 PRESIDENT BUSH SIGNS LANDMARK GENETIC NONDISCRIMINATION INFORMATION ACT INTO LAW May 19 TOOLS FOR THE FDA: THE FDA FINALLY ASKS CONGRESS FOR MORE MONEY ... BAYER REMOVES REMAINING TRASYLOL STOCK GoodSearch What if HFA earned a penny every time you searched the Internet? Or how about if percentage of every purchase you made online went to support our cause? Well, now we can! GoodSearch.com is a new Yahoo-powered search engine that donates half its advertising revenue, about a penny per search, to the charities its users designate. Get started now >> GoodSearch What if HFA earned a penny every time you searched the Internet? Or how about if percentage of every purchase you made online went to support our cause? Well, now we can! GoodSearch.com is a new Yahoo-powered search engine that donates half its advertising revenue, about a penny per search, to the charities its users designate. Get started now >> Our Mission The Hemophilia Federation of America is a national nonprofit organization that assists and advocates for the bleeding disorders community. Our Vision The vision of the Hemophilia Federation of America is that the bleeding disorders community has removed all barriers to both choice of treatment and quality of life.

32. Kentucky Hemophilia Foundation Most people recognize hemophilia as the “bleeder s disease,” but few understand the intense physical, financial and emotional strain it puts on a family. http://www.kyhemo.org/

Providing education, research and advocacy on behalf of people with bleeding disorders. Hemophilia is an hereditary illness that affects 1 out of every 7,500 males from birth. Although women rarely have hemophilia, they play a role in that they carry the defective gene that causes it. A similar disorder, von Willebrand disease, affects 1-2% of the population, affecting men and women equally. These disorders result in spontaneous and prolonged bleeding due to the lack of clotting factors in the blood. They are chronic, often debilitating, disorders for which there is no cure. Explore our web site to learn more. Thanks for visiting! Check out our new blog for the most current news, information and good, old fashioned interaction with others who care! http://kyhemo.blog-city.com 2008 Mardi Gras Ball slide show 2007 Mardi Gras Ball slide show View our Christmas Party slide show Click here to make a Paypal donation to Kentucky Hemophilia Foundation, Inc.

33. Hemophilia 55b.gif (211483 bytes) view 207 KB version view 13 KB version. Extensive bruising of the left forearm and hand in a patient with hemophilia. http://medgen.genetics.utah.edu/photographs/pages/hemophilia.htm

Hemophilia view 207 KB version view 13 KB version Extensive bruising of the left forearm and hand in a patient with hemophilia. Examinations Photographs Movies Links ... noJava Home

34. Bayer Hemophilia Awards Program Early Career Investigator Award Clinical Training Award hemophilia Caregivers Education Award Bayer hemophilia Awards Program, Bayer HealthCare http://www.bayer-hemophilia-awards.com/

Important updates Deadlines for Awards Application Process Review Process ... Browser Requirements Attention: Your browser does not support Javascript, or Javascript support has been disabled. This web site utilizes the latest Internet technology, and in order to experience the full functionality of this web site you will need to ensure that Javascript is enabled. Bayer Global Bayer US Living with Haemophilia Kogenate FS ... Imprint

35. Hemophilia Foundation Of IL hemophilia Foundation of Illinois is dedicated to improving the quality of life for persons affected by hemophilia and related blood disorders. http://www.hemophiliaillinois.org/

Our Mission Events Factor Net Newsletter Volunteer ... Información en Español Hemophilia Foundation of Illinois Bleeding Disorders About Us The Hemophilia Foundation of Illinois is an organization dedicated to improving the quality of life for persons affected by hemophilia and other inherited bleeding disorders, and complications of these disorders or their treatment. The Hemophilia Foundation of Illinois provides and promotes Advocacy, Consumer Services, Education and Research. We are a not-for-profit 501(c)(3) organization and members of the National Hemophilia Foundation, the Hemophilia Federation of America, and Community Health Charities. We are pleased to announce that applications are being accepted for the Bradley Krueger Memorial Scholarship Deadline is June 1, 2008 Select Here for the Application and More Scholarship Opportunities Información en Español Year eleven and our Golf Outing is on the move! HFI will kick-off our 60 th Year Anniversary at the renowned, top-rated Medinah Country Club. This nearly 90 year old institution is the perfect venue for us to begin to celebrate our rich history of serving the Illinois bleeding disorder community. The 2008

36. Hemophilia Association Of New Jersey - Hemophilia, Bleeding Disorders The hemophilia Association of New Jersey offers assistance to persons with hemophilia and their families from our office located in East Brunswick. http://www.hanj.org/

You are visitor since 01.01.98. An Website. NEWSLETTER CORRECT / SUPER BOWL The Super Bowl game will be held at University of Phoenix Stadium in Glensdale, Arizona. We apologize for the mistake in our letter stating the location as Miami, Florida. Please call with any further questions. GOVERNOR CORZINE SIGNS OFF ON THE GOVERNOR’S TASK FORCE FOR WOMEN WITH BLEEDING DISORDERS TASK FORCE REPORT. The committee will meet again to decide how to proceed with the recommendations highlighted in the report. This will determine the direction of the Women’s Committee for the next several years. Our sincere CONGRATULATIONS and heartfelt THANKS to Dr. Saidi, Chair of the committee, Celeste Andriott-Wood and Peri Nearon, from the NJ Department of Health and Senior Services, Senator Barbara Buono and the rest of this formidable Task Force for a job well done!! If you would like a copy of the report, call Julie at the office. LEGISLATIVE ANNOUNCEMENT! Please continue to support H.R.6175, a bill to expand access to Medicare Supplemental Insurance for all beneficiaries with disabilities, to your federal congressional representatives and Senators Menendez and Lautenberg. Even though NJ already has access to medigap policies for those that are disabled and under age 65, many states do not. If you wish to know the phone, fax or e-mail of your representative, call the office.

37. Hemophilia An overview of this inherited blood condition affecting men in which blood is prevented from clotting. http://menshealth.about.com/cs/genetics/a/hemophilia.htm

zOBT=" Ads" zGCID=" test1" zGCID+=" test5" zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zDO=0 z160=zpreC(160,600);z336=zpreC(336,280);z728=zpreC(728,90);z155=zpreC(336,155);zItw=160 if(thin)gEI('abw').className='thin'; Search Men's Health var h2=document.getElementsByTagName("h2")[0];if(h2.getElementsByTagName("a")[0].firstChild.nodeValue.length>28)h2.className="long"; Home Health Men's Health Email ... Men's Health More from About.com Browse Men's Health Diseases Embarrassments Ethnic Health Gallery ... Topics A-Z Search Apply now to guide this site Hemophilia h1 = document.getElementById("title").getElementsByTagName("h1")[0];h1.innerHTML = widont(h1.innerHTML); Genetic Condition Mostly Affecting Men From About.com Updated: July 24, 2006 About.com Health's Disease and Condition content is reviewed by Kate Grossman, MD Filed In: Diseases Genetic conditions in men What is hemophilia? When bleeds occur they are generally internal and common sites are joints such as the knees, ankles and elbows. Bleeding can also occur into organs and muscles although this is less common. Bleeds may also occur spontaneously and with no apparent cause, but more often are the result of trauma (injury). Famous people with hemophilia One of the most famous hemophiliacs was Russian Prince Tsarevitch Alexei, killed along with all his family during the Russian revolution in 1917. The disease had been passed to him by his mother, a daughter of Queen Victoria.

38. Arizona Hemophilia Association hemophilia Association of Arizona Bleeding Disorders,Education,Health Care,Advocacy. http://www.hemophiliaz.org/

Contact Us Home About Us Our History ... Past Newsletters Learn about our Fundraising Conference dedicated to providing high quality and meaningful information to the bleeding disorder chapters. = Learn More = My Nana's Best Tasting Salsa Challenge is a statewide culinary festival showcasing the prominence and popularity of our #1 condiment in the United States: salsa! Save the date for Tucson 11/8/08 and Tempe  4/25/09! = Learn More = Camp HONOR is a camp specifically for children and youth ages 8-17 with bleeding disorders and their siblings. = Learn More = Welcome to the Arizona Hemophilia Association The Hemophilia Association is dedicated to enhancing the quality of life in the bleeding disorder community by providing programs and services that offer emotional, financial and educational assistance and support. We advocate and create awareness to promote and protect access to healthcare for the bleeding disorder community. We bring together individuals and families of all ages to promote the sharing of experiences and information. 818 East Osborn Road Ste 105 Phoenix, AZ 85014

39. Great Lakes Hemophilia Foundation Wisconsin Von Willebrand Disease Bleeding Diso Education Services of the Great Lakes hemophilia Foundation Wisconsin von Willebrands Disease Bleeding Disorders. http://www.glhf.org/

DONATE OUR MISSION CONTACT US About GLHF What We Do Advocacy Legislative Tracking Staff ... Volunteering Information Education Glossary Hemophilia FAQs vonWillebrand FAQs ... National Treatment Centers Services Camperships Financial Services Patient Notification Publications ... Women's Outreach Events Calendar Family Events Sponsored Events Links Kids, etc. HomeCare/Pharmaceuticals Helpful Links 1% of every dollar we receive goes directly towards patient services and programs. Volunteers are the Heart of GLHF Information on Volunteering Donate to GLHF using charity number Important Information click on links Mark your Calendars! Watch for new events The 17TH ANNUAL Teeing Up For Charity® Scholarships now available! Summer camp Sign-up now! Registration deadline June 20th! Learn more about Takoda Mission In Motion NHF Prevention Grant NHF Medical Advisories Medical Updates Support GLHF by holding your own event! PICTURES Newsletters GLHF Headline News Spring 2008 Archives TEEN TALK Winter 2008 Archives Parent Empowerment Newsletter ... Archives Join our Email List!

40. FDA Licenses New Hemophilia Treatment Feb 21, 2008 The U.S. Food and Drug Administration today licensed a treatment for hemophilia A, a rare, hereditary bloodclotting disorder that affects http://www.fda.gov/bbs/topics/NEWS/2008/NEW01799.html

FDA Home Page Search FDA Site FDA A-Z Index Contact FDA FDA News FOR IMMEDIATE RELEASE February 21, 2008 Media Inquiries: Peper Long, 301-827-0599 Consumer Inquiries: 888-INFO-FDA FDA Licenses New Hemophilia Treatment The U.S. Food and Drug Administration today licensed a treatment for hemophilia A, a rare, hereditary blood-clotting disorder that affects approximately 15,000 individuals, almost exclusively males, in the United States. The new treatment, called Xyntha Antihemophilic Factor (Recombinant) Plasma/Albumin Free, is a genetically engineered version of factor VIII, a protein essential for the clotting of blood. Factor VIII, known as an anti-hemophilic factor, is missing or decreased in patients with hemophilia A. Xyntha is licensed for the control and prevention of bleeding, which can occur spontaneously or after an accident or injury in patients diagnosed with hemophilia A. Xyntha is also licensed to help prevent surgical bleeding in this patient population. Xyntha is manufactured using recombinant DNA techniques that enable scientists to create new DNA strands with specific traits, such as the capacity to produce a specific protein.

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