41. Living With Hemophilia Read how she and her husband came to have two wonderful sons and how she s bringing together other families of children with hemophilia. http://www.livingwithhemophilia.com/

Home Essentials At Home On The Go ... Transitions var fo = new FlashObject("header5.swf", "mainFlash", "100%", "100%", "6", "#fff"); fo.addParam("allowScriptAccess", "sameDomain"); fo.addParam("quality", "best"); fo.addParam("loop", "false"); fo.addParam("menu", "false"); fo.write("mainFlash"); Search The Latest News Essentials Tips for Handling an Insurance Lapse Boost Your Child’s Hemophilia IQ At Home Strike the Best Family Balance When Siblings Feel Left Out On The Go 7 Tips for a Successful ER Visit Keeping Your Child Safe Away from Home Transitions Summer Camp Decisions Diagnosis Details - Keeping Your Facts Straight Lorie Kerstetter, Parent and PEP Facilitator As a carrier, Lorie Kerstetter had to face her fears of starting a family that stemmed from her experiences growing up. Read how she and her husband came to have two wonderful sons and how she's bringing together other families of children with hemophilia. Find out more about Lorie Joe Caronna, President and Founder, Inalex Communications

42. FAMOHIO, Inc. - Home A registered charity that promotes the sharing of knowledge, experiences and concerns among those individuals with hemophilia and related bleeding http://www.famohio.org/

FAMOHIO, Inc. Family Annual Meeting of Hemophiliacs in Ohio 66 East Lynn Street Columbus OH ph: 614.464.2605-office fax: alt: 614.441.2323-cell carrie @landerma nmanageme nt ... Contact Us Home Our History  Six men founded FAMOHIO, Inc. in the spring of 1992. That year, “FAMOHIO” was the acronym for “First Annual Meeting of Hemophiliacs in Ohio” but it has since meant “Family Annual Meeting of Hemophiliacs in Ohio.” FAMOHIO, Inc. was grown out of the frustration of these adult men and their colleagues who had been infected by HIV in part because of the failure of government, product manufacturers, hemophilia organizations and others to adequately manage the quality of factor and communicate in a timely manner the risks of treatment. These men believed that an annual meeting of hemophiliacs and their families would provide an opportunity to share information, educate themselves, and work together for their common good. It was hoped that such a symposium would minimize the likelihood of a recurrence of such a calamity. Of the six men who organized FAMOHIO, Inc., Tommy Burr, Tom Drake, Ira Gaffin and Darrell Hairston have died. All four were active in and strong advocates of the hemophiliac community, and left behind loved ones as well as many friends who have ensured the continuation of FAMOHIO, Inc.

43. Welcome To The Home Page For The Louisiana Hemophilia Foundation The Louisiana hemophilia Foundation is a 501 C 3 statewide nonprofit organization that provides a variety of services and support to those affected by http://www.louisianahemophilia.org/

It's time for a cure. . . It's time for a cure. . . It's time for a cure. . . It's time for a cure. . . It's time to apply for LHF 2008 Fall Scholarships - Go to the Scholarship Page for more information and forms. See the new February 2008 Hemo-Flo Newletter Click Here ... LA Chip Expansion Update 2008 Upcoming events. . .Annual Meeting- June 20-22 . . Camp Wounded Knee - July 13-18. . Diva Day September 13 . . Swing for a Cure Golf Tournament Monday, October 20 . .NHF 60th Annual Meeting, Denver, CO Nov 13-15 . .Christmas Party December 6 . . Go to our Events page for more information and registration. In M emory of " Huey J ohn Wilson" Welcome to the home of the Loui siana Hemophilia Foundation Our mission is to improve the quality of life and assist persons affected by inherited bleeding disorders by providing education, advocacy, support services and by promoting research. The Louisiana Hemophilia Foundation is a 501 C 3 statewide non-profit organization that provides a variety of services and support to those affected by bleeding disorders, and their family members. It is not necessary to be a member to receive our services, or to attend any of our functions. Most services are complementary although some have a nominal charge that can be waived upon request (based on financial need). Calling All Volunteers!

44. Canadian Hemophilia Society: Ontario Chapter Committed to improve the quality of life of people affected by hemophilia and related blood conditions, and to work towards a cure. http://www.hemophilia.ca/en/8.1.php

Hemophilia Ontario Welcome to Hemophilia Ontario 2008 Hemophilia Ontario Summit and Annual General Meeting April 18-20, 2008 Hemophilia Ontario would like to acknowledge the financial contributions of the following sponsors. Thank you for your support of this important event. 2008 Camp Wanakita June 29-July 27 Camp registration has officially closed. Letters of confirmation will be sent to all successfully registered campers the week of April 21, 2008. Our camp sponsors for 2008 2008 Hemophilia Ontario Youth (H.O.Y.) summer event Stay tuned for updates! Just the Guys Weekend Getaway September 19-21, 2008 This event provides an opportunity for fathers (or male models) to participate in a weekend of fun and learning with their son(s) living with a bleeding disorder. This years event will take place at Camp Ki-Wa-Y located just outside St.Clements, Ontario and will once again welcome members of the Central Western Ontario Region, South Western Ontario Region and the Toronto and Central Ontario Region. For additional details, please contact your local Regional Service Coordinator. Our sponsors for 2008 Support Us Previous Updates Forum Contact Us ... Hemophilia Ontario Offices

45. New England Hemophilia Association Auction NEHA Legislative Briefing NHF Washington Days, Washington D.C. Family Camp 08 Springfest 08. © 2005 2007 New England hemophilia Association. http://www.newenglandhemophilia.org/

ABOUT US BLEEDING DISORDERS EVENTS ADVOCACY ... MY NEHA [an error occurred while processing this directive]

46. Mary M. Gooley Hemophilia Center hemophilia Info for Teachers and Caregivers Von Villebrand Disease Other Single Factor Deficiencies Hemochromatosis Gaucher s Disease http://www.hemocenter.org/

preloadRollover("images/scrolling/scroll_sm_up.gif", "scroll_sm_up"); preloadRollover("images/scrolling/scroll_sm_down.gif", "scroll_sm_down"); var n=14; NEWSLINE ALL ABOUT US Our History Our Philosophy Our Mission MEDICAL INFO. Other Web Resources Glossary Hemophilia Hemophilia Info for Teachers and Caregivers ... Research FOR PATIENTS Mentor Program Home Infusions Do the Five - Prevention Program Travel Letters ... All About Ports COMPREHENSIVE CARE All About Comprehensive Care Comprehensive Care in Pictures CALENDAR Calendar IN THE NEWS CenterUpdates Media Releases Meet Our Staff Committees ... Meet our Board Spring is in the air ... enjoy! CONTACT HIPAA WHO WE ARE TRIATHLON ... HEMOCENTER.ORG A Iyobu TM Site. Powered by Centcess, Inc. Visit www.iyobu.com

47. Hemophilia: Bleeding And Clotting Disorders: Merck Manual Home Edition There are two forms of hemophilia. hemophilia A, which accounts for about 80% of all cases, is a deficiency in clotting factor VIII. hemophilia B is a http://www.merck.com/mmhe/sec14/ch173/ch173f.html

Search Recent Searches Index Sections A B ... view all sections In This Topic Hemophilia Symptoms and Complications Diagnosis and Treatment Back to Top Section Blood Disorders Subject Bleeding and Clotting Disorders Topics Introduction Disseminated Intravascular Coagulation (DIC) Hemophilia Henoch-Sch¶nlein Purpura Hereditary Hemorrhagic Telangiectasia Thrombocytopenia (ITP, TTP) Thrombophilia ... Von Willebrand's Disease Hemophilia drawAdBox(adPath, numberOfAds, false); Buy the Book Print This Topic Email This Topic Pronunciations aminocaproic acid cephalhematoma hematoma purpura ... thrombocytopenia Hemophilia is a bleeding disorder caused by a deficiency in one of two blood clotting factors: factor VIII or factor IX. There are two forms of hemophilia. Hemophilia A, which accounts for about 80% of all cases, is a deficiency in clotting factor VIII. Hemophilia B is a deficiency in clotting factor IX. The bleeding patterns and consequences of these two types of hemophilia are similar. Deficiency of clotting factor XI also causes a hereditary bleeding disorder. About 50% of cases of factor XI deficiency occur among people of Eastern European Jewish ancestry. Factor XI deficiency affects both males and females and may cause bleeding after injury or surgery. Spontaneous bleeding episodes are usually less frequent and milder than in hemophilia A or B. Hemophilia is caused by several different gene abnormalities. They are sex-linked, which means that the gene abnormalities are inherited through the mother and that nearly everyone with hemophilia is male.

48. Hemophilia Society Of Colorado The hemophilia Society of Colorado advocates for persons living with hemophilia and other coagulation disorders and their related complications by providing http://www.cohemo.org/

Mission Statement The Hemophilia Society of Colorado advocates for persons living with hemophilia and other coagulation disorders and their related complications by providing assistance, support, and education. The society also strives to increase public awareness about Hemophilia and related disorders. 655 Broadway, Suite 575 Denver CO 80203 Uniting to Help the Bleeding Disorders Community FAX: (303) 629-7035 Interim Chapter Administrator: Sonji Wilkes i Western Slope Administrator Mindy Vickers Mountain States Regional Hemophilia and Thrombosis Center Website design and website hosting ... by EduCyber Coming Soon: Yahoo Colorado Bleeding Disorders Discussion Group

49. Hemophilia Foundation Of Nevada A nonprofit consumer advocacy and service organization founded in 1990 to help meet the vast education and support needs of the bleeding disorders community http://www.hemophilianevada.org/

Home Board of Directors How You Can Help ... HFNV History What if the Hemophilia Foundation of Nevada earned a penny every time you searched the Internet? Well, now we can! Be sure to enter: Hemophilia Foundation-Nevada as the charity you want to support. You can now also donate through Paypal Downloads: Donation.pdf CampVolunteerFlyer08.pdf CampVolunteerApp08.pdf CamperApp08.pdf HFNV Mission "To improve the quality of care and life for people with hemophilia, von Willebrand disease and other inherited bleeding disorders through education, peer support and advocacy." Our summer camp program is offered at no cost to Nevada youth age 7-17 affected by hemophilia, vonWillebrand disease and misc bleeding disorders. Camp Independence is specifically tailored to the needs of children with inherited bleeding disorders where they gain valuable skills needed for living independently while at the same time having fun in a safe, medically-supervised setting. Additional information will be mailed out mid April. If you have children eligible to attend camp and have not received any information, contact the HFNV office at 702.564.4368. Compassion, Education, Knowledge Making a Difference in the Lives of Nevada's Bleeding Disorder Community

50. Home: HTRS.org- Hemophilia Research Society home image HTRS.org- hemophilia Research Society Home About HTRS Membership Resources Hemostasis Committee Thrombosis Committee Career http://www.htrs.org/

@import "/Assets/Style/basic.css"; @import "/Assets/Style/secrets.css"; Home About HTRS Membership Resources ... Member Sign In Welcome to HTRS HTRS is dedicated to advancing the care of persons with bleeding or clotting disorders through clinical research, professional mentoring, and continuing medical education. Incorporated as a nonprofit research society in 1992, HTRS members include pediatric and adult physicians, allied health professionals, and industry representatives, including many of the directors of hemostasis and thrombosis treatment centers in the United States and Canada. NATF Symposium Our colleagues at the North American Thrombosis Form (NATF) will host a 1-day Symposium on Saturday, September 27, 2008 in Boston, MA. NATF will also be offering a Traveling Fellowship with a deadline of July 15, 2008. For more information on these two opportunities, click here or visit www.NATFonline.org Presentation Slides Available Click here to access slides presented by Dr. Nisha Jain from FDA’s CBER, presented at the HTRS/NASCOLA Scientific Symposium on Friday, April 18, 2008. Dr. Jain’s presentation addresses the regulatory requirements for (and potential pitfalls inherent in) IND applications for clinical research studies. Interested in submitting your research concept to HTRS?

51. Baxter U.S. - Hemophilia Therapy hemophilia is a rare disorder in which a person’s blood does not clot properly because they do not produce enough of, or are missing, blood clotting http://www.baxter.com/therapies/sub/hemophilia_therapy.html

Conditions Therapies Products Services ... Baxter Worldwide > United States Training and Education Sustainability Contact Us < Back To Therapies ... Renal Therapies Hemophilia Therapy Home Therapies Hemophilia is a rare disorder in which a person’s blood does not clot properly because they do not produce enough of, or are missing, blood clotting proteins called factors. The body depends on these clotting factors to stop bleeding after injury and to promote healing. Overview The hemophilia community considers infusion (into a vein) therapy a viable option. For patients with hemophilia A, this is known as factor VIII replacement therapy. This therapy works as a substitute for the missing or nonfunctioning clotting factor VIII protein. When clotting factor is administered after an injury the body begins to use it immediately to form a clot. Replacement therapy works for about 24 hours. If bleeding continues, additional factor may need to be infused. This therapy is not a cure for hemophilia A - it is a temporary replacement therapy used to treat symptoms of hemophilia. A well-recognized treatment for hemophilia is an ultra-pure factor VIII concentrate that is made using recombinant gene technology. The most significant advances in hemophilia treatment have been made in the last four decades. Baxter introduced the first commercially available plasma-derived factor concentrate in the mid 1960s. This was a major advancement over earlier treatments, which contained much lower concentrations of antihemophilic factor. In the early 1970s home treatment of hemophilia became widely available offering people with hemophilia greater independence and reduced hospital stays. Today recombinant DNA technology and the discovery of genes that control production of factor VIII have led to the development of recombinant factor concentrates that do not rely on plasma at all. In 2003, Baxter introduced the first Factor VIII therapy made without any added human or animal plasma proteins and albumin in the cell culture process, purification and final formulation.

52. OMIM - HEMOPHILIA A Nomenclature Phenotype Clinical Features Biochemical Features Other Features Genotype Inheritance Cytogenetics......MIM +306700 http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=306700

53. Inheritance Of Hemophilia A son, whose mother has two normal alleles, will not be affected by hemophilia even if the father has the disease and the defective gene. http://www.accessexcellence.org/AB/GG/x-linked.html

-Advertisement- About AE About NHM Contact Us Site Map ... Advertising Policy Search AE Search AE Activities to Go X-linked Inheritance: Hemophilia Legend: Hemophilia is a sex linked trait in humans, inherited in the same way white eye color in Drosophila. Males are hemizygous, receiving their only X chromosome from their mother. Females are heterozygous, inheriting X chromosomes from both parents. If a female has a defective gene on one of her two X chromosomes, she will be protected from its effects by the normal gene on her second X chromosome. If a male has a mutant X and a normal Y chromosome, he will be affected by a X-linked disease. A son, whose mother has two normal alleles, will not be affected by hemophilia even if the father has the disease and the defective gene. A daughter of the same parents will be a heterozygous carrier. A heterozygous carrier mother and a normal father pass the gene for hemophilia on to possibly one- half of their children. Half the daughters will be carriers and half the sons will be hemophilic. The rest of the siblings will be normal. Daughters, as long as one parent is genotypically normal, can only be carriers. The normal gene on the second X chromosome counteracts the defect and the daughters do not suffer from the trait. If a son receives the defective gene from his mother, he will be hemophilic because the Y chromosome can not counteract the defective gene located on his X chromosome.

54. Utah Hemophilia Foundation - Home Welcome to the Utah hemophilia Foundation. Explore what we re doing to help people with hemophilia in Utah. http://www.hemophiliautah.org/

Utah Hemophilia Foundation Home Advocacy Blog Events News ... Contact Welcome The Utah Hemophilia Foundation invites you to navigate through our new website and discover the programs, networking opportunities, and resources we offer to the bleeding disorders community. The community we serve is comprised of children and adults with bleeding disorders namely hemophilia and von Willebrand disease and additionally encompasses the parents, grandparents, family members, and friends supporting those with a bleeding disorder. Together we are people committed to making a difference. Our Mission: The Utah Hemophilia Foundation serves people with bleeding disorders. Through education, advocacy, outreach and networking, the UHF empowers individuals and families to lead healthier and more self-sufficient lives. We would love to have you join us in this work. info=" " + " " + " " + " " + " " activeX_js(info) Home Advocacy Blog Events News ... Contact

55. Bleeding Disorders Logic To learn more about hemophilia or Von Willebrand disease click here The National hemophilia Foundation 110 Greene Street, Suite 303 New York, NY 10012 http://www.curascript.com/content/pat_bleeding_disorders_logic.htm

English Español Text Size: A A A A ... Plan Sponsor Search: Home Specialty Pharmacy Specialty Care Programs Support Services ... RSV Logic Bleeding Disorders Logic Bleeding Disorders Logic is a medication and specialty care management program for CuraScript patients on therapy for hemophilia and von Willebrand disease. Bleeding Disorders Logic provides additional clinical support and empowers patients with knowledge about their bleeding disorder and how to effectively manage their disease and medication. Bleeding Disorders Logic services include, but are not limited to: Toll-free access to licensed pharmacists for urgent needs 24 hours a day, seven days a week Toll-free access to clinical nurses specially trained in hemophilia and other bleeding disorders Calls from nurses to discuss your progress and anything that may affect your health, detect any new symptoms or medication side effects and help you take your medicine correctly to receive the greatest benefit from it Mailed education materials and access to CuraScript websites that help you manage your condition Coordination with Patient Assistance Programs that offer financial help Access to on-staff social workers who can provide emotional support and help identify community assistance programs in your area To learn more about Hemophilia or Von Willebrand disease click here: Hemophilia Facts Von Willebrand Facts Infusion Logs The information that you record on your infusion log enables your physician to monitor your treatment and make adjustments as needed, and can help you determine whether certain activities increase your risk for bleeding.

56. Untitled Our Web Address Has Changed. Please click below to be directed to our new site www.hemofoundation.org. http://www.hfnconline.org/

Our Web Address Has Changed. Please click below to be directed to our new site www.hemofoundation.org

57. Prognosis For Hemophiliacs Although transfusions and plasma treatments are available, there are still complications that come with having hemophilia. Chronic joint deformities can http://www.ikm.jmu.edu/Buttsjl/ISAT493/Hemophilia/hemophiliaprognosis.html

Prognosis for Hemophiliacs Main X-linked page What is it? Symptoms Incidence ... The European Royal Family Although transfusions and plasma treatments are available, there are still complications that come with having hemophilia. Chronic joint deformities can result from continued bleeding into the joints, but generally an orthopedic specialist can manage this. Some people may also develop antibodies to transfused factor VIII in plasma. This makes the transfusions ineffective and requires them to be administered much more often and in much higher doses. Hemophilia patients are also much more susceptible to blood-borne illnesses due to the fact that they receive blood products very frequently. Since the 1980s, however, the incidence of blood-borne illnesses in blood products has dramatically dropped and is almost unheard of now. And finally, death can be a major complication of the disease, be it from blood loss or from bleeding internally within the brain or other body organs. The picture above is Ryan White. Ryan was a pioneer in the struggle for the rights of hemophilia patients that had AIDS. It was borrowed from http://www.geocities.com/SoHo/

58. Welcome To Hemophilia Options Home Page hemophilia Options is a speicialty care pharmacy offering therapies for patients with bleeding disorders. Services include pharmacy, nursing care, http://www.hemophiliaoptions.com/

Who We Are OptionCare Hemophilia Services is a specialty care pharmacy offering therapies for patients with bleeding disorders. Services include pharmacy, nursing care, home medical supplies and equipment, and reimbursement services. Centers of Excellence Experienced nursing teams trained in bleeding disorder and pediatric proficiencies 24-hour pharmacy/nursing services for rapid response to patient needs Providing a wide selection of factor and factor-related products Continuous Infusion Protocols Patient Care Coordination for product needs, medical equipment, physical therapy, dental care, education and training OptionCare Hemophilia Services works closely with physicians and caregivers to deliver the appropriate level of service and support. Working in cooperation with physicians, insurance companies, and other healthcare professionals, we implement personal treatment plans designed to meet the special needs of each patient. Some patients become independent very quickly with their therapy, others need on-going support. To assure consistency and quality of care, OptionCare Hemophilia Services assigns a Patient Care Coordinator to each patient. The patient is also supported by a clinical pharmacist and a nursing team. This individual approach is cost-effective, and helps to ensure that each patient receives and administers the proper medication for the best possible results. Therapies for Patients with Bleeding Disorders OptionCare Hemophilia Services service for pediatric and adult factor programs are on the leading edge of industry standards in approach to new therapies, products and service.

59. Hemophilia: Cause, Symptoms, Treatment Options, Long-term Outlook hemophilia is group of hereditary bleeding disorders of specific blood clotting factors. There are two main types of hemophilia A and B. http://www.mamashealth.com/blood/

MamasHealth.com Home Blood Diseases Agnogenic Metaplasia Amyloidosis Aplastic Anemia Diabetes ... Wegener's Granulomatosis Links Email Mama How to Switch Careers in Midlife Health benefits of sex Sign up for the MamasHealth Newsletter What is Hemophilia? Hemophilia is group of hereditary bleeding disorders of specific blood clotting factors. There are two main types of hemophilia: A and B. What causes Hemophilia? Hemophilia is caused by an inherited sex-linked recessive trait. The defective gene is located on the X chromosome. The severity of symptoms can vary with this disease, and the severe forms become apparent early on. Bleeding is the hallmark of the hemophilia and typically occurs if an infant is circumcised. Additional bleeding manifestations make their appearance when the infant becomes mobile. Mild cases of hemophilia may go unnoticed until later in life when try occur in response to surgery or trauma. Internal bleeding may happen anywhere, and bleeding into joints is common. Risk factors are a family history of bleeding and being male. What are the Symptoms of Hemophilia?

60. International Hemophilia Club Global Network of people suffering with hemophilia and their families. http://www.geocities.com/hemophiliaclub/

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