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         Hemophilia:     more books (101)
  1. Haemophilia: Proceedings of the IX Congress of the World Federation of Haemophilia, Istanbul, 20-22 August, 1974 (International congress series) by World Federation of Hemophilia, 1975
  2. Pooling Blood: A journey of two girls with hemophilia and their parents' struggle to keep them alive by Cheryl Nineff D'Ambrosio, 2010-02-22
  3. Handbook on hemophilia and other bleeding disorders by dr syed numan, 2010-01-08
  4. Curtis & Jerry on Mount Omega (Adventures with Hemophilia) by Celynd Scaglione, 2006
  5. Cell Genesys obtains results from preclinical hemophilia gene therapy studies.(Brief Article): An article from: BIOTECH Patent News
  6. Minutes of the patients. Hemophilia. / Protokol vedeniya bolnykh. Gemofiliya. by unknown, 2006
  7. Hemophilia and Hemophilioid Diseases
  8. Gale Encyclopedia of Medicine: Hemophilia by Jennifer F. Wilson MS, 2002-01-01
  9. People With Hemophilia: Ryan White, Jason Robertson, Alexei Nikolaevich, Tsarevich of Russia, Prince Leopold, Duke of Albany, Alfonso
  10. Vox Sanguinis (Viral Safety of Plasma-Derived Replacement Factors for Hemophilia , Vol 67, Suppl 4) by P. M. Mannucci, 1994-12
  11. Hemophilia,: Clinical and genetic aspects, (Illinois medical and dental monographs) by Carroll L Birch, 1937
  12. Raising a Child with Hemophilia: A Practical Buide for Parents by by Laureen a Kelley, 1999-01-01
  13. 21st Century Ultimate Medical Guide to Hemophilia - Authoritative Clinical Information for Physicians and Patients (Two CD-ROM Set) by PM Medical Health News, 2009-05-08
  14. Encyclopedia of Family Health; Vol 5: Flotation Therapy - Hemophilia by Jacoby David B, 1998

61. Hemophilia - Lucile Packard Children's Hospital
LPCH, California’s leading children’s hospital, provides information on hemophilia and its types, causes, symptoms, diagnosis, treatment and longterm
http://www.lpch.org/DiseaseHealthInfo/HealthLibrary/hematology/bledhemo.html
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Hematology and Blood Disorders
Pediatric Hemophilia
What is hemophilia?
Hemophilia is an inherited bleeding, or coagulation, disorder. Children with hemophilia lack the ability to stop bleeding because of the low levels, or complete absence, of specific proteins, called "factors," in their blood that are necessary for clotting. Proper clotting of blood helps prevent excessive bleeding. In the US, there are about 18,000 people with hemophilia.
What are the different types of hemophilia?
There are many factors in the blood that are involved in the function of forming clots to stop bleeding. A child with hemophilia is missing, or has a low supply of, one of the factors needed in order for the blood to clot. Two factors that affect blood clotting are factor VIII and factor IX. Hemophilia is classified by its level of severity. Hemophilia may be mild, moderate, or severe, depending upon the level of the blood clotting factors in the blood. The three main forms of hemophilia include the following:
  • hemophilia A - caused by a lack of the blood clotting factor VIII; approximately 85 percent of hemophiliacs have type A disease.

62. Hemophilia - Definition From The Merriam-Webster Online Dictionary
Definition of hemophilia from the MerriamWebster Online Dictionary with audio pronunciations, thesaurus, Word of the Day, and word games.
http://www.merriam-webster.com/dictionary/hemophilia
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hemophilia
Main Entry: Pronunciation: Function:
noun
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New Latin
Date:
 a sex-linked hereditary blood defect that occurs almost exclusively in males and is characterized by delayed clotting of the blood and consequent difficulty in controlling hemorrhage even after minor injuries Learn more about "hemophilia" and related topics at Britannica.com Find Jobs in Your City Pronunciation Symbols
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63. Hemophilia
hemophilia is an inherited bleeding, or coagulation, disorder. Children with hemophilia lack the ability to stop bleeding because of the low levels,
http://www.chw.org/display/PPF/DocID/21869/router.asp

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Hemophilia
What is hemophilia? Hemophilia is an inherited bleeding, or coagulation, disorder. Children with hemophilia lack the ability to stop bleeding because of the low levels, or complete absence, of specific proteins, called "factors," in their blood that are necessary for clotting. Proper clotting of blood helps prevent excessive bleeding.
In the US, there are about 20,000 people with hemophilia. Each year, approximately 400 babies are born with the disorder.
What are the different types of hemophilia? There are many factors in the blood that are involved in the function of forming clots to stop bleeding. A child with hemophilia is missing, or has a low supply of, one of the factors needed in order for the blood to clot. Two factors that affect blood clotting are factor VIII and factor IX. Hemophilia is classified by its level of severity. Hemophilia may be mild, moderate, or severe, depending upon the level of the blood clotting factors in the blood.
The three main forms of hemophilia include the following:
  • Hemophilia A - caused by a lack of the blood clotting factor VIII; approximately 85 percent of hemophiliacs have type A disease.

64. Hemophilia - Treatment Options - Conditions & Treatments - DrugDigest
The main treatment for hemophilia is replacing the clotting factor that is too low or missing. Clotting factors are given in differing doses according to
http://www.drugdigest.org/DD/HC/Treatment/0,4047,550488,00.html
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Hemophilia How is it treated? The main treatment for hemophilia is replacing the clotting factor that is too low or missing. Clotting factors are given in differing doses according to the weight of the individual and the severity of the bleeding. Clotting factor products are powders that are packaged in sterile glass vials. Many of them require special storage such as refrigeration. When a dose is needed, the powder is dissolved in small amounts of sterile water and the resulting solution is either injected into a vein or mixed with a larger amount of fluid and dripped into a catheter that is inserted into a vein (an IV infusion). In individuals who have mild forms of hemophilia, replacement therapy is generally not used, unless the individual is going to be participating in sports or is having a dental procedure done. With mild hemophilia, desmopressin (DDAVP) is the agent that is normally used. DDAVP is a synthetic hormone that releases von Willebrand factor which transports factor VIII thus increasing factor VIII levels. DDAVP is not really a clotting factor and is available in two forms: injection and nasal spray. With moderate forms of hemophilia, clotting factor replacement should begin when bleeding starts, when bleeding is expected (e.g. surgery), and when participating in activities that increase the bleeding risk (e.g. contact sports). For individuals with moderate or severe hemophilia, prompt administration of the missing clotting factor reduces the risk of chronic complications that may result from repeated or prolonged bleeding episodes.

65. HemophiliaMoms.com – Stories From Moms Like You
Welcome to hemophiliaMoms.com—The Web site with real stories from moms like you, along with practical information to help you meet the dayto-day challenges
http://www.hemophiliamoms.com/
The Web site with real stories from moms like you, along with practical information to help you meet the day-to-day challenges of raising a child with hemophilia. Whether your child is an infant, an adult, or somewhere between, HemophiliaMoms.com is your trusted source for information. Important Safety Information Prescribing Information Contact Us Site Map ... Helixatefs.com Important Safety Information for Helixate FS Helixate FS is a recombinant factor VIII (FVIII) product used to treat hemophilia A when there is a demonstrated deficiency of FVIII, a plasma clotting factor. Helixate FS should be administered cautiously in patients with previous hypersensitivity to constituents of FVIII preparations of known sensitivity to mouse or hamster protein. Adverse events are generally minor. The most common adverse events include injection-site reactions, dizziness, and rash. For more information about Helixate FS, please see full Prescribing Information

66. Hemophilia
hemophilia is an inherited bleeding disorder caused by the absence or decreased levels of certain blood clotting factors.
http://www.tylermedicalclinic.com/hemophilia.htm
The Tyler Medical Clinic Assisted Conception - Affordable Infertility Treatments - List of Diseases - Hemophilia A and Hemophilia B Hemophilia is an inherited bleeding disorder caused by the absence or decreased levels of certain blood clotting factors. In response to an injury such as a cut, the body releases platelets to form a clot at the injury site to prevent further bleeding. Various factors are produced by the platelets and these interact to form a clot. Absence or decreased levels of certain clotting factors causes increased bleeding time and results in Hemophilia. There are two types of Hemophilia and these are classified according to the deficient clotting factor. The more common form, Hemophilia A, is caused by a Factor VIII deficiency, and the less common form, Hemophilia B, is caused by Factor IX deficiency. Approximately 2/3 of all cases of Hemophilia are inherited, the rest are due to a sporadic genetic mutation. A couple with a familial history of hemophilia should consult with a genetic counselor. They should also be aware and should consider a new genetic test called Preimplantation Genetic Diagnosis (PGD). PGD tests for genetic defects and determines the gender of an embryo prior to implantation. Through this mechanism, the chance of having an affected child can be significantly reduced. A genetic counselor can advise a couple on whether PGD will be of benefit to them. PGD can also test for other genetic disorders and is continually being improved to encompass other hereditary diseases.

67. Understanding Hemophilia -- The Basics
From symptoms to treatment to prevention, get the basics on hemophilia from the experts at WebMD.
http://www.webmd.com/a-to-z-guides/understanding-hemophilia-basics
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68. Hemophilia Foundation Of Minnesota/Dakotas
To meet the needs and enhance the quality of life for persons who live with hemophilia, related genetic bleeding disorders, and their complications.
http://www.hfmd.org/
Welcome to the Hemophilia Foundation of Minnesota/Dakotas Our Mission:
To meet the needs and enhance the quality of life for persons who live with hemophilia, related genetic bleeding disorders, and their complications.
HFMD Post-Secondary Scholarship
Apply Now! Stay on top of ongoing legislative developments affecting the hemophilia community. GET INVOLVED TODAY
Click Here
to the Legislative Action Center of the Hemophilia Federation of America (HFA)
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Contact Information:
Telephone

(651) 406-8655 Fax (651) 406-8656
Postal address:
Hemophilia Foundation of Minnesota/Dakota's (HFMD) 750 S. Plaza Dr, Suite #207, Mendota Heights, MN 55120 Electronic mail: hemophiliafound@visi.com This page was last updated

69. :: Hemophilia Foundation Of Southern California ::
hemophilia foundation of southern california, helping the community with hemophilia bleeding disorders for 50 (fifty) years.
http://www.hemosocal.org/

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70. GeneReviews: Hemophilia A
hemophilia A GeneReview. GeneReviews are expertauthored, peer-reviewed, current disease descriptions that apply genetic testing to the diagnosis,
http://www.geneclinics.org/profiles/hemo-a/
Hemophilia A GeneReview. GeneReviews are expert-authored, peer-reviewed, current disease descriptions that apply genetic testing to the diagnosis, management, and genetic counseling of patients and families with specific inherited conditions.

71. FDA Licenses New Hemophilia Treatment
The US Food and Drug Administration licensed a treatment for hemophilia A, a rare, hereditary bloodclotting disorder that affects approximately 15000
http://www.medicalnewstoday.com/articles/98277.php
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The U.S. Food and Drug Administration licensed a treatment for hemophilia A, a rare, hereditary blood-clotting disorder that affects approximately 15,000 individuals, almost exclusively males, in the United States.
The new treatment, called Xyntha Antihemophilic Factor (Recombinant) Plasma/Albumin Free, is a genetically engineered version of factor VIII, a protein essential for the clotting of blood. Factor VIII, known as an anti-hemophilic factor, is missing or decreased in patients with hemophilia A.
Xyntha is licensed for the control and prevention of bleeding, which can occur spontaneously or after an accident or injury in patients diagnosed with hemophilia A. Xyntha is also licensed to help prevent surgical bleeding in this patient population.

72. Hemophilia - Symptoms, Diagnosis, Treatment Of Hemophilia - NY Times Health Info
A free collection of articles about hemophilia published in The New York Times.
http://topics.nytimes.com/top/news/health/diseasesconditionsandhealthtopics/hemo
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73. DSHS Hemophilia Assistance Program
The home page for the Texas Department of State Health Services hemophilia Assistance Program.
http://www.dshs.state.tx.us/hemophilia/default.shtm
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Hemophilia Assistance Program
The Hemophilia Assistance Program provides blood, blood derivatives, or manufactured pharmaceutical products to eligible program recipients. To be eligible for the Program, the applicant must:
  • Be age 21 or older
  • Be a Texas Resident
  • Have a diagnosis of hemophilia by a physician licensed to practice in Texas
  • Have an income level at or below 200% of the federal poverty guidelines
For more information contact:
Hemophilia Assistance Program, MC 1938
Texas Department of State Health Services
PO Box 149347
Austin, Texas 78714-9347
1-800-222-3986 Toll Free
512/458-7150 Local 512/458-7162 Fax Last Updated November 15, 2007 Contact Us Compact with Texans Homeland Security Internet Policy ... Texas Online

74. Hemophilia Symptoms - Boston Hemophilia Center - Clinical Services - Children's
The typical symptom of hemophilia is excessive, uncontrollable bleeding. The level of clotting factors in the blood determines the severity of the disorder.
http://www.childrenshospital.org/clinicalservices/Site1971/mainpageS1971P7.html
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Boston Hemophilia Center
Boston Hemophilia Center Our Services About Hemophilia Causes of Hemophilia Hemophilia Symptoms Diagnosis Treatment Long-Term Outlook Additional Resources ... Find Us Return to Blood Disorders Home Clinical Services Boston Hemophilia Center Hemophilia Symptoms Hemophilia Symptoms The typical symptom of hemophilia is excessive, uncontrollable bleeding. The level of clotting factors in the blood determines the severity of the disorder. Hemophiliacs do not bleed faster than normal people; they bleed for a longer time because the blood is not able to clot. People with mild or moderate hemophilia often experience bleeding episodes with major surgeries, dental extractions or trauma. These children are often not diagnosed until a bleeding episode occurs. Severe hemophilia is diagnosed when factor VIII or IX levels are less than 1 percent of normal. Bleeding in these children may occur spontaneously, or be triggered by the simple activities of daily living. Bleeding usually occurs in the soft tissues, muscles and joints. Serious bleeding into the head can occur with trauma and can lead to significant complications. Other symptoms of hemophilia include:
  • Bruising - usually increased bruising is seen at 12 to 18 months of age, when a child is becoming more active. Even minor trauma can result in a large hematoma, or bruise.

75. Yale Medical Group Health Information
Children with hemophilia lack the ability to stop bleeding because of the low levels, In the US, there are about 17000 people with hemophilia.
http://ymghealthinfo.org/content.asp?page=P00093

76. The Coalition For Hemophilia B
To empower people with hemophilia and their families to act as advocates on their own behalf. To help ensure that each individual and their loved ones have
http://www.coalitionforhemophiliab.org/
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Mission
To make quality of life the focal point of treatment for individuals with hemophilia in the 21st century.
   John R. Taylor, Jr - Founder
Our Vision
We are dreaming of a world with
  • A treatment we can all afford Prophylaxis for everyone Better delivery - no more infusions A longer half-life - maybe one pill a month
There are many steps to a cure… Let’s take them.
Goals
  • To empower people with hemophilia and their families to act as advocates on their own behalf. To help ensure that each individual and their loved ones have the highest standards of product and the best possible quality of life.
Accomplishments
  • Monitor and support research. Primary source of information nationally and internationally. Factor IX News: our educational newsletter responds to needs for information, advocacy, and scientific research exchange.

77. Northern Ohio Hemophilia Foundation
The Northern Ohio hemophilia Foundation (NOHF) is a private, nonprofit organization established in 1954 as a support system by and for concerned parents of
http://www.nohf.org/

78. Hemophilia: Nevada, Coumadin, Von Willebrand’s Disease & Deep Vein Thrombosis.
hemophilia Nevada clinic, Coumadin, Von Willebrand’s Disease deep vein thrombosis. Blood disorders, bleeding disorders clotting disorders.
http://www.htcnevada.org/
The Hemophilia and Thrombosis Center of Nevada 2020 W. Palomino Lane Suite 110 Las Vegas, Nevada 89106 since May 5, 2008 Last updated May 5, 2008 webmaster RIS The Hemophilia and Thrombosis Center of Nevada (HTCN) was founded in 1997 as the first treatment center in the state of Nevada dedicated to the diagnosis and treatment of patients with bleeding or clotting disorders. The HTCN is a non profit corporation. We support ourselves with educational grants and research grants. All team members are employed through community organizations who donate their time to the treatment center. We currently care for patients and families throughout Nevada and the neighboring underserved regions. While clinics are held in Las Vegas, we attempt to coordinate care through the primary care physician's office locally. If you are interested in volunteering at the HTCN or helping support us, please call the center at the number below. We always need help with our special events and pediatric clinics. Our Mission The HTCN is dedicated to improving the care of patients with bleeding or clotting disorders regardless of the ability to pay.

79. Hemophilia-newyork
The hemophilia Association of NY serves persons with hemophilia and related congential blood disorders in New York City and surrounding areas.
http://www.hemophilia-newyork.org/

80. Hemophilia B
hemophilia B is a hereditary blood coagulation disorder. It is caused by a deficiency of a blood plasma protein called factor IX that affects the clotting
http://adam.about.com/encyclopedia/infectiousdiseases/Hemophilia-B.htm
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Hemophilia B
Definition
Hemophilia B is a hereditary blood coagulation disorder . It is caused by a deficiency of a blood plasma protein called factor IX that affects the clotting property of blood.
Alternative Names
Christmas disease; Factor IX hemophilia
Causes
Hemophilia is a hereditary bleeding disorder of specific blood clotting factors. There are several types of hemophilia, including hemophilia A and B. Hemophilia A is 7 times more common than hemophilia B. Hemophilia B is the result of a deficiency of clotting factor IX. The disorder is caused by an inherited X-linked recessive trait, with the defective gene located on the X chromosome. Thus, the disorder occurs primarily in males. Females carry two copies of the X chromosome, so if the factor IX gene on one chromosome is defective, the other can compensate. Males, however, carry only one X chromosome, so if the factor IX gene on that chromosome is defective, they have the disease. Females with one defective factor IX gene are carriers of this trait. Half of the male babies born from women who carry the defective gene have a 50% chance of developing the disease. Half of the female babies born from women who have the defective gene have a 50% chance of being carriers.

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